WHILE ACT UP’S POLITICAL WORK BECOMES INSTITUTIONALISED AND MEMORIALISED, THE
MYTH PERSISTS THAT HIV NO LONGER KILLS
~ Chrys Papaioannou ~
As the campaigns, slogans and direct actions of the legendary activist group ACT
UP (AIDS Coalition to Unleash Power), originally formed in New York in 1987,
enter history books, exhibition rooms and cinema screens, our fight to save the
lives being lost to AIDS has never been more urgent. While ACT UP’s political
work becomes institutionalised and memorialised, today the persistent myth that
HIV no longer kills is only made worse by deadly political decisions that
decimate disability welfare, fund militarist expansion and genocide, and remove
aid and access to HIV- prevention and HIV-treatment medication from those most
at risk.
This year, for the first time since 1988, the US Government did not commemorate
World AIDS Day, with State Department employees being told not to promote World
AIDS Day through any communication channels (whether via social media, media
engagements or public speeches). It is difficult not to view this vile disregard
for all those who have lost their children, friends, and lovers in light of a
longer history of eugenicist policies and remarks made by fascist politicians,
such as Nigel Farage who, in 2014, called for people who are living with HIV to
be banned from migrating to the UK and Jean-Marie Le Pen in France who, in 1987,
publicly stated that AIDS is a form of leprosy, proposing that people with AIDS
be forcibly isolated.
It was on World AIDS Day this year, 1 December 2025, a grey and gloomy Monday
morning, that I and dozens of others from the wider ACT UP London network left
our homes early, put on our waterproofs, and headed to Trafalgar Square to
remember the dead and fight for the living. ACT UP London is a diverse,
non-partisan group of individuals united in anger and committed to direct action
to end the HIV pandemic. I had seen pictures of die-ins before but no pictures
and no video footage of any die-in could capture what it felt like to
participate in this poignant act of solidarity.
As we surrounded the Equestrian Statue of King Charles I in the small traffic
island opposite Nelson’s column, the Big Ben within sight, the thirty minutes
spent lying on the cold pavement with our eyes closed felt like a lifetime.
Light drizzle gave way to heavy rain and the wind kept blowing our makeshift
cardboard gravestones away. The cardboard gravestones themselves told the story
of consecutive governments failing us – Tory cuts, Labour cuts, decades and
decades of misinformation, stigma and violence inflicted through corporate greed
and state neglect.
Just this November, the UK government announced a 15% reduction in the country’s
contribution to the Global Fund to fight AIDS, tuberculosis and malaria.
According to the Terrence Higgins Trust, “in November 2024, the UK Health
Security Agency (UKHSA) stated that it is unlikely that we will meet the 2025
targets, but the 2030 target of zero new HIV transmissions is within our reach.”
And yet, not only has the 2025 goal not been met, but it looks even more
unlikely that the goal of “no new HIV transmissions by 2030” will be met either.
In a carceral neoliberal context where class, race and citizenship status
cruelly determine who is likely to live a long healthy life with HIV and who is
not, there are thousands and thousands of people who cannot access daily oral
PrEP (pre-exposure prophylaxis) and the twice-yearly injectable drug
Lenacapavir. Widespread stigma associated with being HIV-positive is further
exacerbated by the societal stigma experienced by sex workers and people who
inject drugs (PWID), with scarce needle and syringe programmes (NSP) allowing
people to access free and sterile equipment, and whorephobia and the
criminalisation of sex work – whether through the Nordic or other models –
preventing sex workers from accessing healthcare: “Punitive environments have
been shown to limit the availability, access and uptake of HIV prevention,
treatment, care and support for sex workers and their clients”, report UNAIDS.
It might seem that all we demand is for Warfare Britain to turn into Welfare
Britain. But fighting to end AIDS – zero new transmissions, zero new deaths,
zero stigma – means fighting to end the very crux where state violence, racial
capitalism and ethno-nationalism intersect. The hard-earned victories of our
queer elders mean that ‘gay cancer’ can no longer be the homophobic stick with
which they beat us. But turn your gaze not so far from here, to a busy
pedestrian street in central Athens, and you find the lingering ghost of queer
activist Zak Kostopoulos (open about his HIV-positive status and known for his
gay rights activism) who in 2018 was brutally beaten to death by civilians and
the police.
Still lying on the cold wet pavement, I open my eyes to gaze at the sky. A
nothingness almost, an ever-expanding grey with no variation. I hear the name of
Zak Kostopoulos, of Derek Jarman, of Natalie Caroline Wells and her son Judd
Conrad Morgan Wells, both of whom passed away in London the other week, days
apart. My sight catches a glimpse of the Union Jacks hanging from the nearby
buildings and then of a small flock of birds dispersing and reorienting. Silence
still equals death. And until Britain’s war machine is dismantled and healthcare
is free for all, we know that we will not be choosing silence.
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Photos by Holly Buckle @stickypicnic, video by Joseph Wilson
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